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Sickle Cell Disease and Thalassemia in Georgia

The Georgia Health Policy Center (GHPC) has led several state efforts related to surveillance and health promotion for sickle cell disease and thalassemia since 2010. The goal of this work is to gain better outcomes for people in the state with hemoglobin disorders by using data from multiple sources to inform policy, outreach, and practice. Our partners in this work include the Georgia Department of Public Health, Sickle Cell Disease Foundation of Georgia, Inc., and the comprehensive sickle cell centers at Children’s Healthcare of Atlanta, Grady Hospital, and Georgia Regents University.

Currently the GHPC serves as a coordinating center for projects to characterize the complications associated  with therapeutic blood transfusions in persons with hemoglobinopathies. Past projects have included Georgia’s Public Health Research, Epidemiology, and Surveillance for Hemoglobinopathies (PHRESH) project, funded by the Centers for Disease Control and Prevention (CDC). PHRESH was a follow-up to the Registry and Surveillance System for Hemoglobinopathies (RuSH) project, for which Georgia was one of seven states selected to conduct population-based surveillance of sickle cell disease and thalassemia. CDC and the National Heart, Lung and Blood Institute of the National Institutes of Health funded RuSH. Read more about RuSH.

 

Sickle Cell, Inc. GradyGDPHGA Regents UniversityChildren's Healthcare of Atlanta

 

Publications:

                    – Sickle Cell Disease in Chatham County
                    – Sickle Cell Disease in Dougherty County
                    - Sickle Cell Disease in Metro Atlanta (Clayton, Cobb, DeKalb, Fulton, Gwinnett)
                    - Sickle Cell Disease in Muscogee County
                    – Sickle Cell Disease in Richmond County

 

Additional Resources:

Partners:

 

*This project is supported by Cooperative Agreement 5U50DD001010 from the Centers for Disease Control and Prevention. Its contents are solely the responsibility of the authors and do not necessarily represent the official views of CDC.