Public Health Research, Epidemiology, and Surveillance for Hemoglobinopathies (PHRESH) Project
The GHPC leads Georgia’s Public Health Research, Epidemiology, and Surveillance for Hemoglobinopathies (PHRESH) project. PHRESH is a follow-up to the Registry and Surveillance System for Hemoglobinopathies (RuSH) project for which Georgia was one of seven states selected to conduct population-based surveillance of sickle cell disease and thalassemia. CDC and the National Heart, Lung and Blood Institute of NIH funded RuSH; while PHRESH is supported by CDC alone. The GHPC’s partners on the project are the Georgia Department of Public Health, Sickle Cell Disease Foundation of Georgia, Inc., and the comprehensive sickle cell centers at Children’s Healthcare of Atlanta, Grady Hospital, and Georgia Regents University. The goal of the work is to gain better outcomes for people in Georgia with sickle cell disease by using data from multiple sources to inform policy, outreach, and practice.
The team has produced the following publications*:
- Survey of Provider Information Needs—This brief describes the findings of our survey of primary care providers in Georgia regarding their access to appropriate information for sickle cell patients and themselves on hydroxyurea, immunizations, and transcranial Doppler screening.
- Incidence and Migration—This brief describes our findings on the number of individuals with sickle cell disease who are born in Georgia and the number who move to Georgia from other states or countries.
- Contributions to Surveillance by Dataset—This brief describes how multiple existing datasets were used to identify cases and categorize them according to the case definition
- Using Multiple Data Sets to Build a Surveillance System for Hemoglobinopathies: Early Lessons from Georgia—Poster presented at the 2nd National Conference on Blood Disorders in Public Health, Atlanta, GA, March 12-14, 2012
- Constructing a Georgia Surveillance System for Hemoglobinopathies Using Multiple Data Sets: The First Step towards a Comprehensive Prevention and Service Delivery Strategy—Poster presented at the 2012 AcademyHealth Annual Research Meeting, Orlando, FL, June 24-26, 2012
- RuSH Strategies from the Field: Data Collection—Case examples from the seven RuSH states regarding data collection
- RuSH Strategies from the Field: Health Promotion—Case examples from the seven RuSH states regarding health promotion
- Sickle Cell Disease in Georgia: Findings from RuSH—Overview of findings from the RuSH project for patients, families, and the public
- Sickle Cell Disease in Georgia: Findings from RuSH Facts for Providers—Overview of findings from the RuSH project for health care providers
- Community outreach posters with sickle cell disease data specific to regions of Georgia:
– Sickle Cell Disease in Chatham County
– Sickle Cell Disease in Dougherty County
- Sickle Cell Disease in Metro Atlanta (Clayton, Cobb, DeKalb, Fulton, Gwinnett)
- Sickle Cell Disease in Muscogee County
– Sickle Cell Disease in Richmond County
Partners and additional resources:
- Information and support for patients, families, and providers
Sickle Cell Foundation of Georgia, Inc.: 404-755-1641; toll-free 800-326-5287; sicklecellga.org
Sickle Cell Information Center website: scinfo.org
CDC Information: www.cdc.gov/ncbddd/sicklecell
- Comprehensive sickle cell centers in Georgia
Children’s Healthcare of Atlanta (children/youth): 404-785-1200
Georgia Regents University (children/youth and adults): 706-721-2171
Grady Health System (adults): 404-616-3572
- Georgia’s Newborn Screening Program
Georgia Department of Public Health: 404-657-4143; health.state.ga.us/ programs/nsmscd
- Georgia’s RuSH and PHRESH Projects
Angela Snyder, Principal Investigator, firstname.lastname@example.org
- Related Articles:
- Angela Snyder, research assistant professor at the Georgia Health Policy Center; Mary M. Hulihan; Lisa Feuchtbaum; Lanetta Jordan; Russell S. Kirby; William Young; Yvonne Greene; Joseph Telfair; Ying Wang; William Cramer; Ellen M. Werner; Kristy Kenney; Melissa Creary; and Althea M. Grant, (2014). “State-based surveillance for selected hemoglobinopathies.” Genetics in Medicine, doi:10.1038/gim.2014.81
- 9.27.13 “Linking Screening and Support for Sickle Cell.” JoAnn Beasley and Kristen Oliver,
Georgia Department of Public Health.
*This project is supported by Cooperative Agreement 5U50DD001010 from the Centers for Disease Control and Prevention. Its contents are solely the responsibility of the authors and do not necessarily represent the official views of CDC.