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Public Health Research, Epidemiology, and Surveillance for Hemoglobinopathies (PHRESH) Project

The GHPC leads Georgia’s Public Health Research, Epidemiology, and Surveillance for Hemoglobinopathies (PHRESH) project. PHRESH is a follow-up to the Registry and Surveillance System for Hemoglobinopathies (RuSH) project for which Georgia was one of seven states selected to conduct population-based surveillance of sickle cell disease and thalassemia. CDC and the National Heart, Lung and Blood Institute of NIH funded RuSH; while PHRESH is supported by CDC alone. The GHPC’s partners on the project are the Georgia Department of Public Health, Sickle Cell Disease Foundation of Georgia, Inc., and the comprehensive sickle cell centers at Children’s Healthcare of Atlanta, Grady Hospital, and Georgia Regents University. The goal of the work is to gain better outcomes for people in Georgia with sickle cell disease by using data from multiple sources to inform policy, outreach, and practice.

The team has produced the following publications*:

                    – Sickle Cell Disease in Chatham County
                    – Sickle Cell Disease in Dougherty County
                    - Sickle Cell Disease in Metro Atlanta (Clayton, Cobb, DeKalb, Fulton, Gwinnett)
                    - Sickle Cell Disease in Muscogee County
                    – Sickle Cell Disease in Richmond County

Partners and additional resources:

  • Information and support for patients, families, and providers
    Sickle Cell Foundation of Georgia, Inc.: 404-755-1641; toll-free 800-326-5287; sicklecellga.org
    Sickle Cell Information Center website: scinfo.org
    CDC Information: www.cdc.gov/ncbddd/sicklecell
  • Comprehensive sickle cell centers in Georgia
    Children’s Healthcare of Atlanta (children/youth): 404-785-1200
    Georgia Regents University (children/youth and adults): 706-721-2171
    Grady Health System (adults): 404-616-3572
  • Georgia’s Newborn Screening Program
    Georgia Department of Public Health: 404-657-4143; health.state.ga.us/ programs/nsmscd
  • Georgia’s RuSH and PHRESH Projects
    Angela Snyder, Principal Investigator, angiesnyder@gsu.edu
  • Related Articles:

Angela Snyder, research assistant professor at the Georgia Health Policy Center; Mary M. Hulihan; Lisa Feuchtbaum; Lanetta Jordan;  Russell S. Kirby; William Young; Yvonne Greene; Joseph Telfair; Ying Wang; William Cramer; Ellen M. Werner; Kristy Kenney; Melissa Creary; and Althea M. Grant, (2014). “State-based surveillance for selected hemoglobinopathies.Genetics in Medicine, doi:10.1038/gim.2014.81

- 9.27.13 “Linking Screening and Support for Sickle Cell.” JoAnn Beasley and Kristen Oliver,
Georgia Department of Public Health.
(http://dph.georgia.gov/blog/2013-09-27/linking-screening-and-support-sickle-cell)

 

*This project is supported by Cooperative Agreement 5U50DD001010 from the Centers for Disease Control and Prevention. Its contents are solely the responsibility of the authors and do not necessarily represent the official views of CDC.