About this Project
The Georgia Health Policy Center (GHPC) is a data-coordinating center for multi-institutional projects focused on surveillance of and health promotion for individuals with blood disorders. GHPC is spearheading data-driven efforts to characterize the complications associated with blood transfusions in people with hemoglobinopathies (blood disorders such as sickle cell disease and thalassemia). The award, from the U.S. Centers for Disease Control and Prevention (CDC) for “Characterizing the Complications Associated with Therapeutic Blood Transfusions for Hemoglobinopathies,” enables compilation and analysis of surveillance data to inform development of policy, outreach, and practice aimed at improving outcomes for patients with blood disorders.
Our partners in this work include the Georgia Department of Public Health, Sickle Cell Disease Foundation of Georgia Inc., and the comprehensive sickle cell centers at Children’s Healthcare of Atlanta, Grady Hospital, and Georgia Regents University. GHPC and study partners are developing data methods for evaluating outcomes; disseminating provider- and patient-focused practice recommendations for reducing transfusion complications; and advising CDC on dissemination, implementation, and evaluation efforts across the country.
GHPC has led several state efforts related to surveillance and health promotion for sickle cell disease and thalassemia since 2010. The work includes planning, organizing, and convening multidisciplinary teams focused on clinical services, public health outcomes, and data coordination related to hemoglobinopathies. Areas of focus have included:
- Creation of a population-level surveillance system using multiple datasets to measure incidence and prevalence of the disease and population-based mortality and to track health care use over time
- Clinical preventive guidelines for those with hemoglobin disorders including immunizations, early and periodic screening with Transcranial Doppler to identify stroke risk, and the use of hydroxyurea
- Evaluation of the strengths and limitations of using linked administrative data to perform health services research for sickle cell disease
Provider Training Video Series
Click here for REdHHoTT’s four-part, CME- and CNE-accredited series on evidence-based practices for
Reducing Complications of Therapeutic Blood Transfusion in Sickle Cell Disease
– Sickle Cell Disease in Chatham County
– Sickle Cell Disease in Dougherty County
– Sickle Cell Disease in Metro Atlanta (Clayton, Cobb, DeKalb, Fulton, Gwinnett)
– Sickle Cell Disease in Muscogee County
– Sickle Cell Disease in Richmond County
Earlier hemoglobinopathy efforts were funded by the CDC and the National Heart, Lung and Blood Institute of the National Institutes of Health under the Registry and Surveillance System for Hemoglobinopathies (RuSH) project and Public Health Research, Epidemiology, and Surveillance for Hemoglobinopathies (PHRESH) project.
- Information and support for patients, families, and providers
Sickle Cell Community Consortium: 706-619-6029
Sickle Cell Foundation of Georgia, Inc.: 404-755-1641; toll-free 800-326-5287
Sickle Cell Information Center
CDC Information on Sickle Cell Disease
CDC Information on Thalassemia
CDC Sickle Cell Data Collection Program
- Comprehensive sickle cell centers in Georgia
Children’s Healthcare of Atlanta (children/youth): 404-785-1200
Augusta University (children/youth and adults): 706-721-2171
Grady Health System (adults): 404-616-3572
- Georgia’s Newborn Screening Program
Georgia Department of Public Health: 404-657-4143
- Georgia’s RuSH and PHRESH Projects
Angela Snyder, Principal Investigator: 404-413-0285; firstname.lastname@example.org
Meet the Researchers
Ph.D., Yale University
M.P.H., Tulane University
B.S., University of Richmond
Angie Snyder is the director of health policy and financing at the Georgia Health Policy Center, and her work focuses on applied research of policy and program evaluation for state- and community-level health projects. Her research uses both qualitative and quantitative data (including administrative databases) to study the health outcomes that result from the organization… more »
M.P.H., Emory University
B.E., Vanderbilt University
Jane Branscomb is a senior research associate at the Georgia Health Policy Center. She is actively involved in policy analysis and evaluation in projects related to health promotion, public health planning, and health system transformation. She has a particular interest in high-leverage opportunities to advance health equity and remove barriers to health.
Branscomb leads the… more »
M.S., Southern Polytechnic State University
M.A., Peking University
B.A., Peking University
Mei Zhou is a senior research associate at the Georgia Health Policy Center. She has expertise in working with large data sets, especially Medicaid claims data analysis.
Zhou’s current projects include evaluation of Georgia’s Children’s Health Insurance Program, research and surveillance for hemoglobinopathies with the Georgia Department of Public Health, research and education… more »
M.P.H., University of South Florida
B.S., University of South Carolina
Ashley Singleton is a research associate II at the Georgia Health Policy Center. Her areas of expertise include adolescent sexual and reproductive health, strategic planning, and program evaluation.
Singleton’s current projects include work with the Center of Excellence for Children’s Behavioral Health to provide fidelity monitoring and workforce development for High Fidelity Wraparound… more »
MBA, Georgia State University
M.A., American University
B.S., Radford University
Teri Wheaton is the marketing manager for the Georgia Health Policy Center. Her professional background is in marketing and communications, graphic design, web design, and film production.
Wheaton provides external and internal marketing support for the center overall, including website maintenance, social media management, event and conference support, and design of marketing collateral. Additionally, she… more »
M.P.H., Emory University
B.S., Emory University
Lori Solomon is the communications and marketing manager at the Georgia Health Policy Center. She brings with her experience across the spectrum of health writing and communications.
She assists with a wide range of the center’s needs including internal communications, communications with external partners, and assisting with project deliverables. Specifically she helps with writing and… more »
B.A., Georgia State University
Giselle Lynch is an administrative assistant for the Georgia Health Policy Center. In this role, she manages the front desk, working closely with the student assistants. She provides support for center projects, including meeting and conference logistics and inventory management. Lynch also assists with front desk security, travel logistics, management of the department’s purchasing card… more »