An evaluation of patient-reported outcomes in sickle cell disease within a conceptual model

An evaluation of patient-reported outcomes in sickle cell disease within a conceptual model

To examine the relations between patient-reported outcomes (PROs) within a conceptual model for adults with sickle cell disease (SCD) ages 18 – 45 years enrolled in the multi-site Sickle Cell Disease Implementation Consortium registry. This study hypothesized that patient and SCD-related factors, particularly pain, and barriers to care would independently contribute to functioning as measured using PRO domains.

Proposed citation: Treadwell, M., Mushiana, S., Badawy, S., Preiss, L., King, A., Kroner, B., Chen, Y., et al. (2022). An evaluation of patient-reported outcomes in sickle cell disease within a conceptual model. Quality of Life Research, 31, 2681-2649. DOI 10.1007/s11136-022-03132-z.