Common data model for sickle cell disease surveillance: Considerations and implications

Common data model for sickle cell disease surveillance: Considerations and implications

Population-level data on sickle cell disease (SCD) are sparse in the United States. The Centers for Disease Control and Prevention (CDC) is addressing the need for SCD surveillance through state-level Sickle Cell Data Collection Programs (SCDC). The SCDC developed a pilot common informatics infrastructure to standardize processes across states.

Proposed citation: Smeltzer, M., Reeves, S., Cooper, W., Attell, B., Strouse, J., Takemoto, C., et al. (2023). Common data model for sickle cell disease surveillance: Considerations and implications. JAMIA Open, 6(2). DOI: 10.1093/jamiaopen/ooad036.