Improving an Administrative Case Definition for Longitudinal Surveillance of Sickle Cell Disease

Improving an Administrative Case Definition for Longitudinal Surveillance of Sickle Cell Disease

Several states are building infrastructure and data collection methods for longitudinal, population-based surveillance systems for selected hemoglobinopathies. The objective of our study was to improve an administrative case definition for sickle cell disease (SCD) to aid in longitudinal surveillance.

Snyder, A. B., Zhou, M., Theodore, R., Quarmyne, M.-O., Eckman, J., & Lane, P. A. (2019). Improving an administrative case definition for longitudinal surveillance of sickle cell disease. Public Health Reports.